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Letter: Add your voice

I recently returned from a workshop in Washington, D.C., put on by a new innovative research organization working to answer the important questions that patients and health-care consumers face daily. The Patient-Centered Outcomes Research Institute supports research that will give patients a better understanding of the prevention, diagnosis, and treatment options available to them and the science that supports those options.

As part of its work, PCORI is inviting patients, caregivers and others in the health-care community to send in questions that will help determine the research topics they will study. This is an exciting invitation to you as a health-care consumer, patient or care-giver.

Have you or a family member faced a challenging health-care issue? Have you ever wished there was more research about a certain health condition or issue? Have you ever wondered about ways that health care could be improved? Please send PCORI your pressing healthcare questions that can direct future research. Go to pcori.org, click on the tab “Get Involved” and send them your questions. It’s that simple.

Now more than ever, it’s time for patients, families, and caregivers to be more active participants in healthcare. Engaging patients is a priority and it all starts with identifying the questions we need answered. I am a part of this effort, and hope that you will be too.



(The writer is co-founder of New Hampshire Patient Voices.)

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